2016 Miracle Ambassador
Evie was diagnosed with a severe form of spina bifida and hydrocephalus before birth. Her family was referred to the St. Louis Fetal Care Institute at SSM Health Cardinal Glennon Children’s Hospital where a team of specialists took care of her mom, Heather, for the remainder of her pregnancy.
Evie was born three weeks premature and was immediately transferred to Cardinal Glennon where she underwent surgery. After a 10-day stay in the Neonatal Intensive Care Unit, Evie finally got to come home from the hospital. Evie would later require a shunt to help drain the excess fluid building up around her brain.
A few months later, it was discovered that she had laryngomalacia (a condition in which the soft, immature cartilage of the upper larynx collapses inward during inhalation, causing airway obstruction). After receiving the all-clear from her doctors, Evie underwent yet another brain surgery to repair the defect.
Since surgery, Evie has been healthy! Now at two years old, her personality has begun to shine! She has even learned to walk with the assistance of a walker.
Evie’s family describes her as a silly, vibrant and overly determined little girl. She has an over-the-top personality which has lovingly earned her the nickname “diva princess”. Her doctors are hopeful she may one day be able to walk unassisted!!